Resources for Patients
At GenPath, we understand that when deciding whether to have genetic testing or when receiving a possible genetic diagnosis, you may need resources for information and community support. The following resources can help support women and their families through each phase of their lives:
General Genetics Resources
- MyGeneticsTree
To help you and your healthcare provider determine if genetic testing may be appropriate, GenPath has created MyGeneticsTree.com, a simple web-based program that allows you to input information about your family history to determine if you meet the proper criteria for genetic testing in as little as 15 minutes. If you have a family history of cancer, you may find that MyGeneticsTree is an invaluable resource. To learn more about MyGeneticsTree, click HERE
- American College of Medical Genetics and Genomics
acmg.net - The American College of Obstetricians and Gynecologists
acog.org - National Society of Genetic Counselors
www.aboutgeneticcounselors.com - Genetic Support Foundation
www.geneticsupport.org - Genes in Life
genesinlife.org - March of Dimes
marchofdimes.org
Carrier Screening
- The National Fragile X Foundation
fragilex.org - The Cystic Fibrosis Foundation
cff.org - SMA Foundation
smafoundation.org
Prenatal Genetic Screening and Diagnostic Testing
- National Down Syndrome Society
ndss.org - National Association for Down Syndrome
nads.org - Fact Sheet about Down Syndrome for New and Expectant Parents
neobgyn.org - Down Syndrome Pregnancy
downsyndromepregnancy.org - Understanding a Down Syndrome Diagnosis
lettercase.org - Trisomy 18, trisomy 13, and related disorders
trisomy.org - Turner Syndrome (Monosomy X)
turnersyndrome.org - Understanding a Turner Syndrome Diagnosis
lettercase.org - The American Association for Klinefelter Syndrome Information and Support
aaksis.org - The Association for X and Y Chromosome Variations (AXYS)
genetic.org - 22q11.2 deletion syndrome
www.22q.org - Spina Bifida Association
spinabifidaassociation.org
Sexual Health
- Center for Disease Control and Prevention
cdc.gov - American Sexual Health Association
ashasexualhealth.org - World Health Organization
who.int - The American College of Obstetricians and Gynecologists
acog.org - The STD Project
thestdproject.com - National Institutes of Health
nih.gov
Cervical Cancer
- National Cervical Cancer Coalition
nccc-online.org - Ask About HPV
askabouthpv.org - International Papillomavirus Society
ipvsoc.org - The American College of Obstetricians and Gynecologists
acog.org - American Cancer Society – Cervical Cancer
cancer.org
Hereditary Cancer
- National Cancer Institutes
cancer.gov - American Cancer Society
cancer.com - Cancer Support Community
cancersupportcommunity.org
Please note that by clicking any of the links above, you will leave the GenPath Diagnostics website. GenPath does not control these sites and accepts no responsibility for their content.